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Invited Review: All hands on deck: The multidiscip ...
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The document highlights the significance of hand function in individuals with neuromuscular disorders, underscoring its impact on daily activities and quality of life. It stresses the necessity of regular assessments and recommends a multidisciplinary rehabilitation approach for personalized solutions to optimize function. Various disorders like ALS, SMA, and muscular dystrophies are discussed, along with assessment methods and management strategies. The importance of adaptive equipment and techniques for independence and participation in daily activities is emphasized. The document also addresses energy conservation, caregiver education, and proactive planning for meaningful social and vocational roles. Furthermore, it discusses the utilization of technology to enhance access and communication for these individuals.<br /><br />The challenges faced by individuals with neuromuscular disorders in using technology are acknowledged, with various adaptive technologies and interventions suggested to aid in overcoming these obstacles. The availability of options like touchpads, trackballs, eye tracking, and speech-to-text software for cursor control, and ergonomic keyboards and adaptive styluses for keyboard input, are discussed. The importance of regular assessments, exercises, assistive devices, and surgical considerations for improving hand function are highlighted. The document also advocates for improved accessibility and societal inclusion through policies promoting universal design and appropriate accommodations. Overall, it stresses the need for a holistic and individualized approach, integrating rehabilitation, adaptive technologies, and advocacy efforts to enhance hand function and quality of life for individuals with neuromuscular disorders.
Keywords
hand function
neuromuscular disorders
daily activities
quality of life
multidisciplinary rehabilitation
ALS
SMA
muscular dystrophies
adaptive equipment
technology utilization
amyotrophic lateral sclerosis
spinal muscular atrophy
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